24/Jul/2014 - Last News Update: 22:50

Sister of 'ageing' girl Hayley Okines, 14, to run 10 marathons

Category: England

Published: 5th Apr 2012 11:16:48

The sister of a 14-year-old girl with a rare ageing condition is setting out to run 10 marathons in 10 days.

Hayley Okines, from Bexhill, East Sussex has progeria, which means she ages eight times faster than normal and has the body of a 100-year-old woman.

Her sister Charlotte is running with her friend Becky Reid. The marathons, in aid of Progeria Family Circle, start in Yorkshire and finish in Kent.

"We are feeling good, but a little nervous," said 26-year-old Ms Okines.

"We woke up to see the sun was out. Yesterday it was snowing."

Ms Okines and Ms Reid are being joined for the first six miles (10km) by John Crowther, father of fellow progeria sufferer, 13-year-old Harry Crowther.

The runners set out from the Crowthers' home in Mirfield, West Yorkshire, with Hayley and Harry there to cheer them on.

"Hayley is very excited," said Ms Okines. "Harry didn't know she was coming with us so it was a great surprise for him."

Ms Okines and Ms Reid have been training for a year for the event, and have raised £3,000 so far.

"We are not really setting ourselves a time target for each day because we don't know how we will feel by day three or four," she said.

"So, if we end up taking six or seven hours we won't really mind.

"We have been planning this for so long we are determined we will finish."

Hayley is one of only 83 people in the world known to have progeria, which was diagnosed just before her second birthday.

The condition causes problems normally found in the elderly such as arthritis and heart disease.

Hayley was predicted a life expectancy of 13 but has been receiving pioneering treatment in Boston, USA for four years.

She has been unable to attend school since last year because of dislocated hips but hopes to return gradually.

Progeria Family Circle is a European patient network which supports children with progeria and their families.

Source:
BBC News External Link Show Citation

Latest News

Harvard Citation

BBC News, 2012. Sister of 'ageing' girl Hayley Okines, 14, to run 10 marathons [Online] (Updated 5th Apr 2012)
Available at: http://www.ukwirednews.com/news/1420807/Sister-of-ageing-girl-Hayley-Okines-14-to-run-10-marathons [Accessed 25th Jul 2014]

News In Other Categories

  • Government 'loses £700m NHS IT legal battle with Fujitsu'

    Taxpayers could be hit with a bill for up to £700m after the government reportedly lost a legal battle with Fujitsu over a failed NHS IT system.
  • Amazon reports $126m quarterly loss

    Amazon has reported a loss of $126m (£74m) in the second quarter and warned that sales could slow in the current quarter.
  • Holywood skinny dippers in sex offenders register warning

    Police in County Down have warned skinny dippers that they could be placed on the sex offenders register.
  • Decision to not publish relief road document criticised

    A decision not to publish a document on the conclusions of a consultation on the planned M4 relief road has been criticised.
  • Bristol Academy extends reach overseas with first foreign students

    With the doors to its brand new £1million training centre officially open, one of the UK's leading apprentice training providers, Bristol based S&B Automotive Academy, is showcasing its world-class facilities by launching a series of foreign student exchanges for the first time in its 41-year history. To get a flavour of what life is like as an apprentice in the UK, the Academy hosted 16 apprentice engineers and bus drivers from the G9 Automotive College in Hamburg, Germany, as part of a Europe-wide vocational training initiative called the ‘Leonardo Programme’ with support from the European Social Fund. In a reciprocal arrangement, S&B will be sending nine apprentices to Germany during February 2012 so that they can get an appreciation of life in the automotive industry on the Continent. A further three German exchange groups are being planned for next year. Designed to assist the development of vocational skills and training across Europe, including work placements for trainees, the Leonardo Programme has a budget of €1.75bn, which is helping to encourage UK organisations to work with their counterparts abroad. In what is expected to be another challenging year for employers in the UK automotive sector, S&B’s Chief Executive, Jon Winter, claims that the exchange initiative will bring many benefits to the Academy and its apprentices: “In a world of global automotive brands, it’s important for our learners to understand the international context of the industry they have chosen to make their career. This new exchange programme will enable apprentices and Academy staff alike to achieve a better understanding of the challenges and opportunities within the automotive arena in Europe. With the Academy’s influence also extending to the USA and Asia, there’s every possibility that this initiative could move further afield in the future.” Continued Winter: “The need for skilled technicians across the world is on the increase and we actively encourage our apprentices to look at broader horizons during their training. Many of them have already learned the phrase ‘Vorsprung durch Gelehrtheit’, quite simply, ‘Advancement through learning.” In the 2010/11 academic year, S&B doubled the number of successful Apprenticeships over the previous year with some 350 apprentices graduating from the Academy. At the same time, achievement levels reached an all-time high with an overall success rate of 85%. For those learners on the Advanced Apprenticeship three-year programme, success rates were even higher, at over 98%. PHOTO CAPTION: As part of their exchange visit, S&B Automotive Academy arranged for the German apprentices to visit Hampshire bus operator, Bluestar, at its Barton Park depot. The students are pictured with S&B’s Andy West (3rd right) and Steve Prewett, Bluestar’s Area Engineering Manager (2nd right). Ends http://www.sandbaa.com
  • Eliaquim Mangala: Manchester City website shows 'signing' video

    Manchester City have released a video that appears to show Porto defender Eliaquim Mangala signing for the club.